top of page
Search


A wobbly road to motherhood: Pregnancy
Pregnancy with chronic illness was never going to be easy—but I couldn’t have predicted just how physically and emotionally intense it would be. From early hyperemesis to multiple infections, hospital stays, and medication challenges, this is my honest story of navigating pregnancy with PoTS, lupus, chronic migraine, a catheter and EDS!
It’s not medical advice—just my experience, shared in case it helps someone else feel a little less alone.

Actively Autoimmune
5 days ago4 min read
Â
Â
Â


A wobbly road to motherhood: Conception and Chronic Illness
(Note: This is not medical advice—just my personal experience, shared in the hope it might help someone else on a similar path. I also...

Actively Autoimmune
Jun 204 min read
Â
Â
Â


Jaw Pain: A Holistic Approach
Jaw pain used to always be blamed on the temporomandibular joint (TMJ), the hinge like connection that allows the lower part of the jaw...

Actively Autoimmune
Oct 19, 20205 min read
Â
Â
Â


Pain Management: Heat Therapy
Heat therapy is when any sort of heat is used to help manage pain in the body on its own or in combination with analgesics.

Actively Autoimmune
Oct 16, 20205 min read
Â
Â
Â


Migraine and Exercise: What does the research say?
Everyone’s experience of Migraine is different which is why no one form of exercise will be right for everyone and for some exercise can..

Actively Autoimmune
Sep 13, 20205 min read
Â
Â
Â


How many reps and sets with Chronic Illness?
I get so many messages about this, both about the exercises I post specifically and workouts in general with chronic illness.

Actively Autoimmune
Sep 2, 20205 min read
Â
Â
Â


Stuff I buy on Amazon that helps with chronic illness life
I was going to name this 'crap I buy' but that seems mean to these products that make such a big difference to me!

Actively Autoimmune
Jun 11, 20205 min read
Â
Â
Â


My journey with steroids
My 2.5 year journey with prednisone sharing the side effects, how it effected me and how I finally managed to get off devils tic tacs!

Actively Autoimmune
May 26, 20207 min read
Â
Â
Â


Flying with Chronic Illness: My top ten tips
From shouting 'these are her laxatives' to trying to explain what a catheter is..here are my tips and airport adventures!

Actively Autoimmune
Mar 3, 20209 min read
Â
Â
Â


Colonic Irrigation: My experience
I put together a blog post sharing my experience of colonic irrigation so far.

Actively Autoimmune
Feb 11, 20206 min read
Â
Â
Â


Appointment Fatigue: The cost on my mental health
It is only until I have had a break of appointments (3 whole weeks it was heaven) have I realised just how much the constant visits to...

Actively Autoimmune
Oct 10, 20193 min read
Â
Â
Â


6 Different ways to relieve foot pain
When the foot works well it is amazing. It co-ordinates over 26 bones, 30 joints and 100 soft tissues to work in the right order at the...

Actively Autoimmune
Oct 10, 20193 min read
Â
Â
Â


Behind the #waitingwiggle
I’ve always been a 'wiggler' as I never could sit still. I was told off by my Nana who said I will never be a ‘lady’ if I don’t stop...

Actively Autoimmune
Aug 23, 20192 min read
Â
Â
Â


Diet & chronic illness: How do you know which diet is best for you?
If you google 'diets for chronic illness' or 'autoimmune disease diets' you are flooded with pages saying - insert diet name- is THE diet...

Actively Autoimmune
Jul 18, 20193 min read
Â
Â
Â


Why do I keep talking about Self-compassion?
I have started seeing a pain psychologist because I felt my resilience of pain, medical procedures, infections and chronic illness life ba

Actively Autoimmune
May 22, 20195 min read
Â
Â
Â


PAIN: Is it all in my head?
"Pain is really strange" (S. Haines, 2015) When I was 13 I had my first experiences of 'chronic pain'. I had injured my ankle, and then...

Actively Autoimmune
Mar 6, 20194 min read
Â
Â
Â


Fatigue & Exercise: How do you exercise when you are exhausted 24/7?
I think when it comes down to exercising with chronic illness you have to look at your mindset. I know for me its no longer "ooh can I be mo

Actively Autoimmune
Nov 28, 20183 min read
Â
Â
Â


It's okay not to be okay: How I deal with my lupus anniversary
Anniversaries of significant events or the death of a loved one leads to that date forever marked in your brain. Each year that passes...

Actively Autoimmune
Aug 23, 20182 min read
Â
Â
Â


Pill Shaming: Don't judge me for taking the medication I need
They make me feel like it was ME that chose to take these tablets. Like I thought, "Ooo you know what I fancy, steroids; that round fat face

Actively Autoimmune
Jul 10, 20182 min read
Â
Â
Â


Has chronic illness turned me into a pessimist?
It's no coincidence once something goes 'wrong' many things follow. Most chronic illnesses overlap or many are connected even if it is not..

Actively Autoimmune
Jul 4, 20183 min read
Â
Â
Â
bottom of page